Rob Burrow was a rugby league giant and a most extraordinary man

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A flickering fire burned inside the inspirational former Leeds scrum-half despite the gravity of his motor neurone disease diagnosis

. Rob, by then, could no longer talk and, in his wheelchair, he could barely move. Motor neurone disease had made him a prisoner in his own body. I was anxious before we began because it seemed an impossible task. Rob, however, had spent much of his life proving that he could overcome preconceptions.

All this was possible because, in the months after his diagnosis for MND, he had read a book out loud so that a computer could store his voice and recreate the words he wanted to say when he was rendered speechless for ever. Despite the gravity of his condition, Rob still made me laugh.Photograph: Danny Lawson/PA

The first were much shorter, of course, but they were moving. “I appreciate the simple things,” Rob’s voice said as it boomed out of the computer. “I don’t have a bucket list because I’ve had such a wonderful life. However, I want to make the most of the time I have left.” Rob was only 41 when he died. He and Lindsey had been together, apart from a brief break when she was at university, since they were 15. It was an immense love story that became even more moving in the often harrowing last year of his life.I have been to their home often in recent months and, as it became increasingly difficult for Rob to swallow even mashed food, Lindsey still found ways to help him.

 

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